My twin brother was disabled, but I don't consider myself a 'glass child'

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<iframe width="100%" height="124" scrolling="no" frameborder="no" src="https://www.wbur.org/cognoscenti/2026/03/26/"https://player.wbur.org/cognoscenti/2026/03/26/special-needs-siblings-disability-family-glass-child-satellite-brian-trapp"></iframe>%3C/textarea"></p><button class="modal-btn-copy">Copy embed code</button></div></div></div></span></div><div class="article-meta"><div class="byline-container"><ul class="article-meta-item--authorlist article-meta-group"><li class="article-meta-item article-meta-item--author"><a class="article-meta-link article-meta-item--author" href="https://www.wbur.org/inside/staff/brian-trapp">Brian Trapp</a></li></ul><time dateTime="2026-03-26T05:04:24.000" class="article-meta-item article-meta-item--date">March 26, 2026</time></div><div class="Share_shareContainer__ZHMXj"><button aria-haspopup="true" aria-expanded="false" class="Share_shareButton__In7ZD"><svg class="icon icon-share" width="16" height="16" viewBox="0 0 14 12" aria-hidden="true"><path fill="" stroke="" stroke-linejoin="round" d="M8.857 1.125V3.68S2.5 3 .5 9.714v1.161c1.632-3.482 6.275-3.482 8.357-2.786v2.322L13.5 5.768 8.857 1.125Z"></path></svg> <span>Share</span></button></div></div></header><section class="ArticleImage_image__uB95c ArticleImage_standard__n5IVy"><figure class="article-fig" style="aspect-ratio:1000 / 716"><picture><img class="article-image" src="https://media.wbur.org/wp/2026/03/Tank.jpg" srcSet="https://media.wbur.org/wp/2026/03/Tank-400x286.jpg 400w, https://media.wbur.org/wp/2026/03/Tank-768x550.jpg 768w, https://media.wbur.org/wp/2026/03/Tank.jpg 1000w" sizes="(min-width: 1120px) 700px, 100vw" alt="The author and his brother in the driveway of their home. (Courtesy Brian Trapp)" width="1000" height="716"/></picture><figcaption class="article-fig-caption">The author and his brother in the driveway of their home. (Courtesy Brian Trapp)</figcaption></figure></section><section class="article-section--content hang-punctuation article-section--first article-section--centered article-sections"><p class="">March is Cerebral Palsy Awareness Month and Developmental Disability Awareness Month, but as the twin brother of Danny, who had severe cerebral palsy and intellectual disabilities, I never need the reminder.</p><p class="">Danny could only say 12 words, but he still found creative ways to express himself. Depending on the way he said my name, “I-an” could mean, “Shut up, you idiot,” “Talk to me, bro” or, if spoken very softly, “I love you.” I spent much of my childhood pushing Danny in his wheelchair through the world. He lived a vibrant life before <a href="https://kenyonreview.org/piece/brian-trapp/">passing away in 2011</a>, when we were 28.</p><p class="">A few years ago, a student asked me if I had “glass child syndrome.” I had never heard the term. Popularized by Alicia Meneses Maples in her <a href="https://www.youtube.com/watch?v=MSwqo-g2Tbk">2010 TEDx Talk</a>, the term “glass child” refers to a sibling of a “high-needs” brother or sister, usually someone with a disability or chronic illness. A glass child’s parents, Maples explained, “are so consumed with the needs of our brothers and sisters that when they look at us, they look right through us, as if we’re made of glass.” Until I heard the term, I thought growing up with Danny had made me a less selfish and more mature person. I thought Danny had made me more patient and empathetic, and given me a greater sense of meaning and purpose. But as I watched Maples’ TEDx Talk, I found myself wondering whether there was something wrong with me. Were all these things I liked about myself actually a trauma response?</p><figure class="article-fig size-full"><picture><img class="size-full article-image" src="https://media.wbur.org/wp/2026/03/Birthday-1.jpg" srcSet="https://media.wbur.org/wp/2026/03/Birthday-1-400x286.jpg 400w, https://media.wbur.org/wp/2026/03/Birthday-1-768x548.jpg 768w, https://media.wbur.org/wp/2026/03/Birthday-1.jpg 1000w" sizes="100vw" alt="The author and his brother celebrate their fifth birthday in Danny's classroom in 1988. (Courtesy Brian Trapp) " loading="lazy"/></picture><figcaption class="article-fig-caption">The author and his brother celebrate their fifth birthday in Danny's classroom in 1988. (Courtesy Brian Trapp)</figcaption></figure><p class="">The glass child symptoms are many: parentification, anxiety, guilt, depression, resentment, people pleasing, perfectionism, anger, codependency and low self-esteem, among others. I soon discovered <a href="https://www.tiktok.com/tag/glasschild">thousands</a> of glass child videos on <a href="https://www.tiktok.com/tag/glasschild">TikTok</a>, in addition to articles in <a href="https://www.cnn.com/2024/04/23/health/glass-children-invisible-sibling-wellness">CNN</a> and <a href="https://www.usatoday.com/story/news/nation/2025/05/27/how-teens-help-glass-children/83728195007/">USA Today</a>. With as many as <a href="https://www.aap.org/en/patient-care/children-and-youth-with-special-health-care-needs/">1 in 4 American children</a> having special health care needs, the glass child ranks are swelling.</p><p class="">It seems to me that many siblings identify with the term because they were taught to suffer in silence. The glass child concept names a pain that they could finally voice. It creates space — and a vocabulary — for the grievances of what disability studies scholar Rachel Adams calls the “asymmetries of need”: when your disabled sibling requires more of the family’s attention and resources.</p><p class="">But the more I read, the more I worried that the glass child metaphor was deeply problematic for disabled people, their siblings and their families. Championed by a coterie of therapists and influencers selling workshops to heal your “emotional neglect,” it frames growing up with a disabled sibling as toxic. It pathologizes special needs families. While it’s true that some studies find that special needs siblings may be at an increased risk for <a href="https://link.springer.com/article/10.1007/s10567-024-00502-6">anxiety</a> and <a href="https://www.jpeds.com/article/S0022-3476(22)00619-9/abstract#%20">depression</a>, other studies point to their increased capacity for <a href="https://pubmed.ncbi.nlm.nih.gov/39548969/">empathy and resilience</a>. Other <a href="https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.13006">research</a> complicates the assumption of “negative” psychological outcomes altogether.</p><figure class="article-fig size-large"><picture><img class="size-large article-image" src="https://media.wbur.org/wp/2026/03/1.jpeg" srcSet="https://media.wbur.org/wp/2026/03/1-400x286.jpeg 400w, https://media.wbur.org/wp/2026/03/1-768x550.jpeg 768w, https://media.wbur.org/wp/2026/03/1-1000x716.jpeg 1000w, https://media.wbur.org/wp/2026/03/1-1536x1099.jpeg 1536w, https://media.wbur.org/wp/2026/03/1.jpeg 1618w" sizes="(min-width: 1120px) 700px, 100vw" alt="The author and his brother, age 7, play on the floor of the living room floor of their home in Catonsville, Md., in 1990. (Courtesy Brian Trapp)" width="1000" height="716" loading="lazy"/></picture><figcaption class="article-fig-caption">The author and his brother, age 7, play on the floor of the living room floor of their home in Catonsville, Md., in 1990. (Courtesy Brian Trapp)</figcaption></figure><p class="">Most troubling is that the glass child metaphor also recycles a dark history. As Andrew Solomon wrote in “<a href="https://www.simonandschuster.com/books/Far-From-the-Tree/Andrew-Solomon/9780743236720">Far from the Tree</a>,” in the first half of the 20th century, doctors commonly disappeared disabled children into institutions with the rationale that “keeping a disabled child at home was unfair to healthy siblings, because the disabled child would take too much of the parents’ energy and focus and embarrass the nondisabled child.” Now, in an America that often keeps our special needs families in a state of perpetual crisis as they attempt to navigate under-resourced social support, medical and educational systems, so-called glass child syndrome risks equating systemic societal failures to “bad parenting.” It reduces the complicated and artful interdependent dance of giving and receiving care to mere sacrifice and burden.</p><p class="">While I had my glass child moments when I didn’t feel seen, I am proud to have grown up in a special needs family. I am proud to be my brother’s twin. Indeed I often felt seen because of my brother. I felt like I was the best wheelchair driver in my age group. We were a comedy team, Danny driving home the jokes with a well-timed “Eh-eh!” (No). He was legally blind, but if you asked him who was ugly, he’d shout my name: “I-an!” Sometimes I had to be my brother’s arms, legs, eyes and voice. It often didn’t feel like a burden, more like an alternative way of moving through the world. I worry that by only having the glass child metaphor to describe experiences like mine, we give in to the ableist assumption that our disabled siblings are catastrophes, instead of people who ultimately enrich our lives.</p><p class="">I’m not trying to whitewash the challenges of having a disabled family member, or argue away someone else’s experience. Being Danny’s sibling wasn’t always easy. I often wanted our life to be less complicated. Sometimes I wished we could walk around the mall without getting stared at, or that we weren’t always waiting for the next medical crisis. And sometimes my brother — like all brothers — could be a jerk. Life in a special needs family is neither a tragedy nor a Pollyannish joy. There has to be more nuance — something in between describing our experience as either the worst thing ever or loudly proclaiming what an inspiration our disabled siblings are, tinkly piano playing in the background. Having a disabled sibling is a mixed bag. It’s complex, like all sibling relationships.</p><figure class="article-fig size-large"><picture><img class="size-large article-image" src="https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel.jpeg" srcSet="https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel-400x280.jpeg 400w, https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel-768x537.jpeg 768w, https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel-1000x699.jpeg 1000w, https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel-1536x1074.jpeg 1536w, https://media.wbur.org/wp/2026/03/Brian-Danny-FerrisWheel.jpeg 1662w" sizes="(min-width: 1120px) 700px, 100vw" alt="The author and his brother, age 18, on a ferris wheel at the Blossom Time Fair in Chagrin Falls, Ohio, in 2001. (Courtesy Brian Trapp)" width="1000" height="699" loading="lazy"/></picture><figcaption class="article-fig-caption">The author and his brother, age 18, on a ferris wheel at the Blossom Time Fair in Chagrin Falls, Ohio, in 2001. (Courtesy Brian Trapp)</figcaption></figure><p class="">In lieu of the “glass child,” I much prefer Julia Miele Rodas’ idea of the “satellite.” In her 2015 essay, “<a href="https://read.dukeupress.edu/pedagogy/article-abstract/15/3/493/20467/Limited-Visibility-Or-Confessions-of-a-Satellite">Limited Visibility; Or Confessions of a Satellite,</a>” she wrote about her brother Josh Miele, who is blind and has severe facial burns (he is also an accessibility technologist, <a href="https://www.hachettebookgroup.com/titles/joshua-a-miele/connecting-dots/9780306832789/?lens=hachette-books">an author </a>and <a href="https://www.macfound.org/fellows/class-of-2021/joshua-miele">MacArthur Fellow</a>). She says his body attracts so much attention that “the visible universe orbits around him” and all other bodies are “‘satellites’ to his ‘primary body.’” When she is with him, the way people stare erases the humanness of both her body and his, one body not mattering, another body mattering too much. Her self-esteem was bound up in helping him navigate the world, and not always in ways that he wanted or needed. She wrote, “my life has been structured by the experience of disability, by the reaction of others to the damaged sibling unit of which I composed an essential part. I have not been blind, but I have lived with blindness.”</p><p class="">If we extend the satellite metaphor to both visible and invisible disabilities, it shows how our lives bend to the increased gravity of our disabled siblings in profound ways. The satellite makes no claims to a syndrome, as if trying to compete with a sibling’s diagnoses. It’s not an automatically negative term, but neither is it overwhelmingly positive. It’s a complicated dynamic that describes a life lived in intimate relation to disability. In the satellite metaphor, disability structures both the disabled person’s life as well as the lives of their families. The ableism, stigma, inaccessibility and lack of resources that oppress disabled people affect their siblings, too. But siblings are also privy to the experiential knowledge that living with a disability provides: adaptation, vulnerability, interdependence and resilience.</p><p class="">I like the satellite metaphor because it doesn’t pit disabled and typical siblings — it doesn’t pit Danny and me — against each other. Instead, it calls us to create a more just world for disabled people and the siblings who orbit around them.</p><div class="section--newsletter"></div></section></article><section class="article-section--story-group article-section--centered hfp"><header class="zone"><div class="zone-inner"><h2 class="zone-hdr">Related:</h2></div></header><ul class="article-story-group"><li class="story-group-item"><a id="relatedlinks-1" class="story-group-link" href="https://www.wbur.org/cognoscenti/2025/04/25/robert-kennedy-jr-public-health-autism-alysia-abbott"><span class="story-group-link-source">Alyssia Abbott: <!-- --> </span>My son has profound autism. 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So I’m making my own</a></li></ul></section><section class="article-section--story-group article-section--centered"><div class="AuthorBox_box__NEK2T"><a class="AuthorBox_photo__kTQGK" href="https://www.wbur.org/inside/staff/brian-trapp"><img src="https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo.jpg" srcSet="https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo-400x400.jpg 400w, https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo-768x768.jpg 768w, https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo.jpg 1000w" sizes="100px" alt="Headshot of Brian Trapp" loading="lazy"/></a><div class="AuthorBox_bio__YvQht"><span><a href="https://www.wbur.org/inside/staff/brian-trapp">Brian Trapp</a> <!-- -->Cognoscenti contributor</span><p>Brian Trapp is the director of Disability Studies at the University of Oregon. He is the author of the novel "Range of Motion" and essays found in Longreads, Kenyon Review, Southern Review, and Brevity.</p><a class="AuthorBox_more__78mbv" href="https://www.wbur.org/inside/staff/brian-trapp">More…</a></div></div></section><div class="section--bp"><div class="uw bp--outer"><div class="bp-inner"><p class="bp-label">Support WBUR</p><div class="bp-content bp-content--centered"><div id="adslot-Radj7m"></div></div></div></div></div><div></div><section class="section--island gtm-article-recirculation section--recirc"><section class="section--island"><div class="row row--river row--centered"><section class="Loading_loading-box__0jDMI"><svg class="icon icon-loader" width="80px" height="60px" xmlns="http://www.w3.org/2000/svg" viewBox="0 0 100 100" preserveAspectRatio="xMidYMid"><rect y="30" x="14" width="12"><animate attributeName="opacity" calcMode="spline" values="1;0.2;1" keyTimes="0;0.5;1" dur="1" keySplines="0.5 0 0.5 1;0.5 0 0.5 1" begin="-0.6s" 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Help power \u003cem\u003eOn Point\u003c/em\u003e by making a donation here: \u003ca title=\"http://www.wbur.org/giveonpoint\" href="https://www.wbur.org/""https://wbur.supportingcast.fm/on-point-club?utm_source=podcast\u0026amp;utm_medium=app\u0026amp;utm_term=show_notes\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\" data-linkindex=\"0\" data-olk-copy-source=\"MessageBody\"\u003ewbur.org/giveonpoint\u003c/a\u003e\u003c/span\u003e","podcastUnpublish":false,"itunesType":"episodic","itunesCategory":"News","itunesSubCategory":"Daily News","itunesAuthor":"WBUR","itunesKeywords":"on point, npr, news, daily, talk show"},{"id":85,"title":"On the Media","source":"on-the-media","description":"On the Media explores how the media \"sausage\" is 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05:04:24","updatedDate":"","relativeURL":"/cognoscenti/2026/03/26/special-needs-siblings-disability-family-glass-child-satellite-brian-trapp","apiURL":"https://api.wbur.org/stories?date=2026-03-26\u0026slug=special-needs-siblings-disability-family-glass-child-satellite-brian-trapp\u0026sources=cognoscenti","externalURL":"","shortLink":"https://wbur.fm/4sSdKON","miniExcerpt":"","excerpt":"\"Sometimes I had to be my brother’s arms, legs, eyes and voice,\" writes Brian Trapp. \"It often didn’t feel like a burden, more like an alternative way of moving through the world.\"","bylines":[{"name":"Brian Trapp","nameLastFirst":"Trapp, Brian","slug":"brian-trapp","wordpressID":1080302,"title":"College Administrator and Author","type":"contributor","channels":["cognoscenti"],"thumbnail":"https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo-600x600.jpg","photo":{"url":"https://media.wbur.org/wp/2026/03/Brian_Trapp_Author_Photo.jpg","width":1000,"height":1000,"title":"Brian 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He is the author of the novel \"Range of Motion\" and essays found in Longreads, Kenyon Review, Southern Review, and Brevity.","bluesky":null,"facebook":null,"website":"https://briantrappwriter.com/about/","email":null,"content":null,"embedMeta":null}],"nprID":null,"nprTranscriptID":null,"nprURL":null,"dateline":"","superTitle":"Essay","superTitleURL":null,"content":["March is Cerebral Palsy Awareness Month and Developmental Disability Awareness Month, but as the twin brother of Danny, who had severe cerebral palsy and intellectual disabilities, I never need the reminder.","Danny could only say 12 words, but he still found creative ways to express himself. Depending on the way he said my name, “I-an” could mean, “Shut up, you idiot,” “Talk to me, bro” or, if spoken very softly, “I love you.” I spent much of my childhood pushing Danny in his wheelchair through the world. He lived a vibrant life before \u003ca href="https://www.wbur.org/""https://kenyonreview.org/piece/brian-trapp/\"\u003epassing away in 2011\u003c/a\u003e, when we were 28.","A few years ago, a student asked me if I had “glass child syndrome.” I had never heard the term. Popularized by Alicia Meneses Maples in her \u003ca href="https://www.wbur.org/""https://www.youtube.com/watch?v=MSwqo-g2Tbk\"\u003e2010 TEDx Talk\u003c/a\u003e, the term “glass child” refers to a sibling of a “high-needs” brother or sister, usually someone with a disability or chronic illness. A glass child’s parents, Maples explained, “are so consumed with the needs of our brothers and sisters that when they look at us, they look right through us, as if we’re made of glass.” Until I heard the term, I thought growing up with Danny had made me a less selfish and more mature person. I thought Danny had made me more patient and empathetic, and given me a greater sense of meaning and purpose. But as I watched Maples’ TEDx Talk, I found myself wondering whether there was something wrong with me. Were all these things I liked about myself actually a trauma response?","\u003cspan data-index=\"1\" data-type=\"caption\"\u003e\u003c/span\u003e","The glass child symptoms are many: parentification, anxiety, guilt, depression, resentment, people pleasing, perfectionism, anger, codependency and low self-esteem, among others. I soon discovered \u003ca href="https://www.wbur.org/""https://www.tiktok.com/tag/glasschild\"\u003ethousands\u003c/a\u003e of glass child videos on \u003ca href="https://www.wbur.org/""https://www.tiktok.com/tag/glasschild\"\u003eTikTok\u003c/a\u003e, in addition to articles in \u003ca href="https://www.wbur.org/""https://www.cnn.com/2024/04/23/health/glass-children-invisible-sibling-wellness\"\u003eCNN\u003c/a\u003e and \u003ca href="https://www.wbur.org/""https://www.usatoday.com/story/news/nation/2025/05/27/how-teens-help-glass-children/83728195007/\"\u003eUSA Today\u003c/a\u003e. With as many as \u003ca href="https://www.wbur.org/""https://www.aap.org/en/patient-care/children-and-youth-with-special-health-care-needs/\"\u003e1 in 4 American children\u003c/a\u003e having special health care needs, the glass child ranks are swelling.","It seems to me that many siblings identify with the term because they were taught to suffer in silence. The glass child concept names a pain that they could finally voice. It creates space — and a vocabulary — for the grievances of what disability studies scholar Rachel Adams calls the “asymmetries of need”: when your disabled sibling requires more of the family’s attention and resources.","But the more I read, the more I worried that the glass child metaphor was deeply problematic for disabled people, their siblings and their families. Championed by a coterie of therapists and influencers selling workshops to heal your “emotional neglect,” it frames growing up with a disabled sibling as toxic. It pathologizes special needs families. While it’s true that some studies find that special needs siblings may be at an increased risk for \u003ca href="https://www.wbur.org/""https://link.springer.com/article/10.1007/s10567-024-00502-6\"\u003eanxiety\u003c/a\u003e and \u003ca href="https://www.wbur.org/""https://www.jpeds.com/article/S0022-3476(22)00619-9/abstract#%20\"\u003edepression\u003c/a\u003e, other studies point to their increased capacity for \u003ca href="https://www.wbur.org/""https://pubmed.ncbi.nlm.nih.gov/39548969/\"\u003eempathy and resilience\u003c/a\u003e. Other \u003ca href="https://www.wbur.org/""https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.13006\"\u003eresearch\u003c/a\u003e complicates the assumption of “negative” psychological outcomes altogether.","\u003cspan data-index=\"2\" data-type=\"caption\"\u003e\u003c/span\u003e","Most troubling is that the glass child metaphor also recycles a dark history. As Andrew Solomon wrote in “\u003ca href="https://www.wbur.org/""https://www.simonandschuster.com/books/Far-From-the-Tree/Andrew-Solomon/9780743236720\"\u003eFar from the Tree\u003c/a\u003e,” in the first half of the 20th century, doctors commonly disappeared disabled children into institutions with the rationale that “keeping a disabled child at home was unfair to healthy siblings, because the disabled child would take too much of the parents’ energy and focus and embarrass the nondisabled child.” Now, in an America that often keeps our special needs families in a state of perpetual crisis as they attempt to navigate under-resourced social support, medical and educational systems, so-called glass child syndrome risks equating systemic societal failures to “bad parenting.” It reduces the complicated and artful interdependent dance of giving and receiving care to mere sacrifice and burden.","While I had my glass child moments when I didn’t feel seen, I am proud to have grown up in a special needs family. I am proud to be my brother’s twin. Indeed I often felt seen because of my brother. I felt like I was the best wheelchair driver in my age group. We were a comedy team, Danny driving home the jokes with a well-timed “Eh-eh!” (No). He was legally blind, but if you asked him who was ugly, he’d shout my name: “I-an!” Sometimes I had to be my brother’s arms, legs, eyes and voice. It often didn’t feel like a burden, more like an alternative way of moving through the world. I worry that by only having the glass child metaphor to describe experiences like mine, we give in to the ableist assumption that our disabled siblings are catastrophes, instead of people who ultimately enrich our lives.","I’m not trying to whitewash the challenges of having a disabled family member, or argue away someone else’s experience. Being Danny’s sibling wasn’t always easy. I often wanted our life to be less complicated. Sometimes I wished we could walk around the mall without getting stared at, or that we weren’t always waiting for the next medical crisis. And sometimes my brother — like all brothers — could be a jerk. Life in a special needs family is neither a tragedy nor a Pollyannish joy. There has to be more nuance — something in between describing our experience as either the worst thing ever or loudly proclaiming what an inspiration our disabled siblings are, tinkly piano playing in the background. Having a disabled sibling is a mixed bag. It’s complex, like all sibling relationships.","\u003cspan data-index=\"3\" data-type=\"caption\"\u003e\u003c/span\u003e","In lieu of the “glass child,” I much prefer Julia Miele Rodas’ idea of the “satellite.” In her 2015 essay, “\u003ca href="https://www.wbur.org/""https://read.dukeupress.edu/pedagogy/article-abstract/15/3/493/20467/Limited-Visibility-Or-Confessions-of-a-Satellite\"\u003eLimited Visibility; Or Confessions of a Satellite,\u003c/a\u003e” she wrote about her brother Josh Miele, who is blind and has severe facial burns (he is also an accessibility technologist, \u003ca href="https://www.wbur.org/""https://www.hachettebookgroup.com/titles/joshua-a-miele/connecting-dots/9780306832789/?lens=hachette-books\"\u003ean author \u003c/a\u003eand \u003ca href="https://www.wbur.org/""https://www.macfound.org/fellows/class-of-2021/joshua-miele\"\u003eMacArthur Fellow\u003c/a\u003e). She says his body attracts so much attention that “the visible universe orbits around him” and all other bodies are “‘satellites’ to his ‘primary body.’” When she is with him, the way people stare erases the humanness of both her body and his, one body not mattering, another body mattering too much. Her self-esteem was bound up in helping him navigate the world, and not always in ways that he wanted or needed. She wrote, “my life has been structured by the experience of disability, by the reaction of others to the damaged sibling unit of which I composed an essential part. I have not been blind, but I have lived with blindness.”","If we extend the satellite metaphor to both visible and invisible disabilities, it shows how our lives bend to the increased gravity of our disabled siblings in profound ways. The satellite makes no claims to a syndrome, as if trying to compete with a sibling’s diagnoses. It’s not an automatically negative term, but neither is it overwhelmingly positive. It’s a complicated dynamic that describes a life lived in intimate relation to disability. In the satellite metaphor, disability structures both the disabled person’s life as well as the lives of their families. The ableism, stigma, inaccessibility and lack of resources that oppress disabled people affect their siblings, too. But siblings are also privy to the experiential knowledge that living with a disability provides: adaptation, vulnerability, interdependence and resilience.","I like the satellite metaphor because it doesn’t pit disabled and typical siblings — it doesn’t pit Danny and me — against each other. Instead, it calls us to create a more just world for disabled people and the siblings who orbit around them.","\u003cspan data-index=\"4\" data-type=\"newsletter\"\u003e\u003c/span\u003e"],"enhanced":false,"seriesMeta":null,"iframeHero":null,"postType":"post","isBreaking":false,"isDeveloping":false,"relatedLinks":[{"url":"https://www.wbur.org/cognoscenti/2025/04/25/robert-kennedy-jr-public-health-autism-alysia-abbott","title":"My son has profound autism. And we are still a family","prefix":"Alyssia Abbott: "},{"url":"https://www.wbur.org/cognoscenti/2025/01/15/bob-dylan-movie-grief-sister-christopher-john-stephens","title":"The circle can be broken — and mended again","prefix":"Christopher John Stephens:"},{"url":"https://www.wbur.org/cognoscenti/2023/12/13/diability-roadmap-epilepsy-wheelchair-adult-independence-dan-samuel-habib","title":"There’s no roadmap for being an adult with a disability. So I’m making my own","prefix":"Samuel Habib: "}],"relatedLinksLabel":"Related:","broadcastType":"","broadcastDate":"","broadcastTime":"","itunesEpType":"","itunesEpNum":0,"itunesSeason":0,"itunesTitle":"","itunesSummary":"","itunesExplicit":false,"socialTease":"\"I like the satellite metaphor because it doesn’t pit disabled and typical siblings — it doesn’t pit Danny and me — against each other,\" writes Brian Trapp.","volume":5,"enableRecirculation":true,"suppressAudio":false,"hideArchiveMsg":false,"disableAds":"enabled","audioDatetime":"1776429277","taxonomy":[{"id":74,"type":"category","name":"Opinion","description":"","slug":"opinion","series":false,"global":false,"count":7026,"hide":false,"primary":true},{"id":70,"type":"category","name":"Life","description":"","slug":"life","series":false,"global":false,"count":11979,"hide":false,"primary":false}],"audio":[{"id":149508,"createdAt":"2026-04-17T12:34:37.000000Z","updatedAt":"2026-04-17T12:34:38.000000Z","fileName":"cognoscenti_0326_special-needs-siblings-disability-family-glass-child-satellite-brian-trapp","playCount":0,"airDate":"2026-03-26","source":"cognoscenti","wordpressTitle":"My twin brother was disabled, but I don't consider myself a 'glass child'","wordpressSlug":"special-needs-siblings-disability-family-glass-child-satellite-brian-trapp","status":"available","subType":"primary","audioLength":274,"nprCDNFilename":null,"description":"\"Sometimes I had to be my brother’s arms, legs, eyes and voice,\" writes Brian Trapp. \"It often didn’t feel like a burden, more like an alternative way of moving through the world.\"","megaphoneID":"cc0fde14-3a59-11f1-9b31-9b995e8d23ac","megaphoneURL":"https://traffic.megaphone.fm/BUR1055873261.mp3","articleAPIURL":"https://api.wbur.org/stories?id=1080376\u0026org=wbur","audioAPIURL":"https://api.wbur.org/audio/149508","org":"wbur","orgKey":null,"audioMeta":{"extension":"mp3","sizeInBytes":4382960,"url":"https://traffic.megaphone.fm/BUR1055873261.mp3"}}],"embedMeta":{"embed-1":{"id":1,"parentID":1080376,"type":"caption","attributes":{"id":"attachment_1080442","align":"aligncenter","width":"1000","alttext":"The author and his brother celebrate their fifth birthday in Danny's classroom in 1988. 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